Tuesday, September 28, 2010


Hi, we have bracelets for Shawn in the color orange which is for kidney cancer that say "STAND FOR SHAWN". We have kid and adult sizes, $3.00 each. If you would like to stand for Shawn and buy a bracelet you can pay threw Paypal and make sure the correct address is registered and I will mail them out to you just add $1.00 for shipping. This is our way to come together and raise awareness for not only Shawn but pediatric kidney cancer. Thank you all for your continued love and support! Lets get these bracelets out!!!!!

Thursday, September 16, 2010

I apologize for the long delay between posts. I am finding it harder to get the time to get to the computer and update. Shawn's still fighting his fight. We spent a nice relaxing two weeks in Prescott. The weather was cooler, Shawn saw snakes, played with chickens and we meet two new wonderful friends, Nancy and Don. We has a great time. Shawn had his six week re-scan and it came back confirmed that the 10-12 cancer spots that were on his lungs are gone and the LOH teat came back negative, so this is all good news and in our favor. Shawn is keeping busy and active. He needs pain meds more and more these days, he's experiencing body pains, belly pains, nerve issues and vomiting....all the normal chemo issues from what I understand. Outside of a few transfusions, his counts have been really good. We have 16 more weeks of chemo left and a few re-scans and other related tests coming up next month. Please keep the prayers coming, it's working! Much love goes out to all.

Monday, August 9, 2010

Shawn is four weeks into chemo treatments. He goes in for chemo every week and a round every three weeks. We have a round tomorrow 8-9-10. Rounds hit him a lot harder because of the over load of drugs killing cells. His bone scan came back clean from cancer. We are waiting for results on the LOH test, which is a test that shows the genetic make up of the tumor. We need there to be no LOH. LOH stands for loss of the genetic make up and that changes the results and treatment dramatically. Shawn's hair is starting to thin and soon will be gone along with eyebrows and eyelashes. He's doing great at keeping busy and swimming. He eats like a little piggy :) With his 2 + tumor gone he can eat more. We have made some new friends at the oncology office at Phoenix Children's Hospital. It makes it more comfortable for the both of us. Our church gave us great tickets to a Diamond Backs game against Washington Nationals, it's important to make good memories. This may be the scariest time in our life but I want him to remember a time full of laughter. Shawn is the beat to my heart and I am doing everything I can to keep him comfortable, happy and stress free. I am learning about how to feed a little person with cancer that is going threw chemo. I also give him massages and rubs every night before bed to help with the nerve pain. You all are fighting half the fight for me.....it's really hard to be angry with all this love and support. I can say that learning my 2 year old has cancer is the hardest most heart braking news I have ever heard, with that I have been carried along since that day 7-5-10. From the bottom of my heart I say thank you and please don't leave us. Without you, I couldn't do this! Sincerely, Desiree Giamei

Tuesday, July 27, 2010

Shawn Giamei

Shawn Giamei is a lively, happy, smart 2 1/2 yr old boy in Queen Creek, AZ. Recently Shawn was diagnosed with Wilm's Tumor. The surgeons at Phoenix Children's Hospital removed Shawn's kidney, along with a 2.5 lb tumor.
Further scanning revealed spots in Shawn's lung. The doctors decided to treat this aggresively in hopes of defeating this cancer.
Shawn started chemotherapy last week. He's a little trooper. Right now he doesn't feel too bad, even taking a swim with his doctor's consent.
Even though insurance covers Shawn's surgery, doctor's care and chemo, it fails to pay for anti-nausea medication, travel expense to and from the hospital, and supplimental medications and vitamins. Also, he has been put on a special diet to help him put on weight.
All of the above extras are vital to Shawn's recovery.
Even though Shawn's extended family is trying to help with these costs, he needs more help.