Monday, August 9, 2010

Shawn is four weeks into chemo treatments. He goes in for chemo every week and a round every three weeks. We have a round tomorrow 8-9-10. Rounds hit him a lot harder because of the over load of drugs killing cells. His bone scan came back clean from cancer. We are waiting for results on the LOH test, which is a test that shows the genetic make up of the tumor. We need there to be no LOH. LOH stands for loss of the genetic make up and that changes the results and treatment dramatically. Shawn's hair is starting to thin and soon will be gone along with eyebrows and eyelashes. He's doing great at keeping busy and swimming. He eats like a little piggy :) With his 2 + tumor gone he can eat more. We have made some new friends at the oncology office at Phoenix Children's Hospital. It makes it more comfortable for the both of us. Our church gave us great tickets to a Diamond Backs game against Washington Nationals, it's important to make good memories. This may be the scariest time in our life but I want him to remember a time full of laughter. Shawn is the beat to my heart and I am doing everything I can to keep him comfortable, happy and stress free. I am learning about how to feed a little person with cancer that is going threw chemo. I also give him massages and rubs every night before bed to help with the nerve pain. You all are fighting half the fight for me.....it's really hard to be angry with all this love and support. I can say that learning my 2 year old has cancer is the hardest most heart braking news I have ever heard, with that I have been carried along since that day 7-5-10. From the bottom of my heart I say thank you and please don't leave us. Without you, I couldn't do this! Sincerely, Desiree Giamei